When I stepped into the crosswalk five years ago, I had no way of knowing that my life would never be the same…
Although I landed on my feet, a distinctly different life is inevitable after a 2 ton vehicle crashes into you. The impact threw me six feet in the air. Even now, after 5 years, 50+ specialists, 100+ medical tests, 500+ appointments, countless pills and failed treatments, being poked and prodded like a lab rat, I still carry the same pain that began that day. One thousand eight hundred twenty five days of pain… so far. That’s just one of the consequences of a single moment of impact. The other consequences came later, from medical “care” and treatments.
From the outside, you’d think I was a picture of health. One look at my medical records tells a different story and one moment spent in my body would give you an entirely different picture. Most of my injuries and illnesses are “invisible” and that changes everything about diagnosis, treatment and recovery.
Over the past five years, I have felt confused, abandoned, betrayed, alone… and invisible.
I never want anyone else to feel that way. And so, I’ve begun work on a new heart project, a project that a dear friend and mentor calls “soul important” work.
My husband, a professional filmmaker, and I have begun production on a feature-length documentary that tells the stories of people living with Invisible Illness. Whether it’s chronic pain, Crohn’s, Lyme, SIBO, PTSD, or any other illness not visible or obvious on the outside, our stories need to be shared. Stories of hope and resilience, courage and perseverance, and above all, a sense of community and belonging that is sorely needed. Not only stories from those suffering, but from the people supporting and healing those who live with invisible illness.
Want to see more? Check out these videos, images, and articles about Invisible Illness.
What Is “Invisible Illness”?
You look “normal” to the casual observer. Smiling. Laughing. Living.
On the inside, you’re struggling, you feel broken and are battling a relentless storm.
You’re misunderstood, misdiagnosed and invalidated.
You feel … alone.
But you are not alone. And we want to inspire you and help connect you to a community of men and women who know exactly what you’re going through.
Your illness may be invisible, but you don’t have to be.
Can you relate? Are you or a loved one suffering from an invisible illness? A physical and/or psychological ailment that has varying degrees of repercussions on a person’s life. It might be chronic pain, Crohn’s, Lyme, SIBO, PTSD, or any other illness not visible or obvious on the outside.
To make matters worse, our healthcare systems doesn’t have the resources or answers. Often doctors are either clueless or careless when it comes to diagnosing and/or treating people living with an invisible illness. Imagine the frustration involved with doctors repeatedly telling you “You’re fine”, when your body is telling you otherwise. Or worse, they prescribe treatment that exacerbates your condition.
- SHARE this page and any of the images on social media sites or by email.
- JOIN our email list to get updates and exclusive behind the scenes access.
- TELL your story or the story of a loved one dealing with invisible illness.
- REFER us to health professionals or sponsors who may want to get involved.
Share Your Story
If you’d like to participate in the documentary, you can use the link below to sign up, and you’ll be directed to fill out a brief form. Whether it’s you or someone you know dealing with invisible illness, or if you are or know a medical or healing professional helping make sense of invisible illness for their patients and clients, we’d love to hear from you. We get a number of submissions, and unfortunately, we cannot reply to all of them. But, if we have the time and resources, and if we think there’s a fit, we’ll reach out to you. In the meantime, your story will be kept in confidence.